I was recently invited to attend the “Is it me of my DCD?” summit held by Dyspraxia/DCD Ireland and I met some very interesting people.

One common theme I found with this event was how long it has taken a lot of people with dyspraxia to find out what dyspraxia is.  

One amazing woman I talked to shared her story with me about how it took her 60 years of her life to even get spotted with dyspraxia and then diagnosed.

What the knowledge that you have dyspraxia (before the confirming diagnosis) does is gives you a clear understanding of your strengths and weaknesses outlined in the most understanding way possible.

What really made me empathise with her story was the fact that she spent her whole life believing that the issues she had that came from her dyspraxia was her own fault.

See this is where the diagnosis becomes a matter bigger than closure, it’s where people need the understanding to be aware of the strengths and weaknesses that come with dyspraxia.

This is not a once off too, I was talking to plenty of people with similar stories at this event and even some of the contributors to this magazine have stories of late diagnosis.

I truly consider myself blessed that I was spotted at a very young age. While I’m still learning new things by attending these events and talking to other people with dyspraxia, I’m in a very good place where I’m aware of when it’s me and when it’s my DCD.

However, too many people are falling through the cracks and going large chunks of their lives undiagnosed.

I recently did an audio documentary exploring different peoples experiences with dyspraxia which will be discussed in further detail a future article, but, when I did this documentary, I had family members from as young as my cousin’s children to as old as my granddad’s brothers tell me they’re also getting assessed.

The reason I mention this is to support my statement that too many people are falling under the radar with their dyspraxia and it is time for a change!

This is what we’re aiming to do. Us as a dyspraxic community need to get as much awareness out there as possible to make sure this stops!

Do you guys have similar experiences or disagree with me?

Feel free to send us a comment by filling out the form below.

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  1. Completely agree too many go through life not understanding, even hating themselves. I probably received my diagnosia aged c14 in1988 but afaik no one ever sat me down and explained it to me so I struggled for another 20 yrs. Post diagnostic support and Counselling is really important. I found the Dyspraxic Adults Forum.

    • Hi Tom, I recently joined the forum actually when I saw you were a contributor, it’s a great place to read and share stories! Likewise I tend to learn more about dyspraxia than through online research and never had it explained to me either so when i did my radio documentary I was going in blind trying to really find a clear definition I could work with


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Ryan is an Irish musician who has struggled with Dyspraxia from a very young age but remains undiagnosed.
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